Comments on: How Psoriasis Affects my Life http://www.psoriasisblog.org/how-psoriasis-affects-my-life/ Suffering from psoriasis? start talking today! Sun, 29 Jan 2012 06:14:43 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Hopehttp://www.psoriasisblog.org/how-psoriasis-affects-my-life/#comment-35252 Hope Sun, 29 Jan 2012 06:14:43 +0000 http://www.psoriasisblog.org/?p=187#comment-35252 I've had p for 9 years I got strep throat which lowered my immune system. Within 24 hrs I had p all over my body. Not so bad on my face or arms..I lucked out there. My twin sister was talking with a friend about this juice called xango juice which has mango steam root and many other ingredients. I've found that it has really helped me. I drink 3 ounces a day morning noon and night. And also mix an ounce in lotion and put it on my spots. It took awhile to work but i was completely cleared up for bout 2 years. Now I think I'm allergic to the new carpet at my job..and now have many spots. It's not even a fraction of how bad it was at first...and I will continue to drink the juice in hopes it will work again. Just thought I would share this info. I know how desperate I was to try anything I thought would help..this really is the only thing non prescription that has helped me. It's hard living with p some people just don't understand. It's not contagious, and truly not anyone's fault that they have it. I feel like this... I've always looked at people for who they are not how they look. The one's that want to make fun of you just aren't worth my time..the one's that stare don't understand or know what it is. I work with the public if I catch someone staring I just smile and say I have psoriasis. I met my husband when my p was out of control, it covered my entire back. I hid it for awhile, then he saw it and asked me what it was. I told him. He didn't care and it made me love him even more!! Try to surround yourself with people who really truly know u...your psoriasis won't even matter! Hope I could be somewhat helpful. I’ve had p for 9 years I got strep throat which lowered my immune system. Within 24 hrs I had p all over my body. Not so bad on my face or arms..I lucked out there. My twin sister was talking with a friend about this juice called xango juice which has mango steam root and many other ingredients. I’ve found that it has really helped me. I drink 3 ounces a day morning noon and night. And also mix an ounce in lotion and put it on my spots. It took awhile to work but i was completely cleared up for bout 2 years. Now I think I’m allergic to the new carpet at my job..and now have many spots. It’s not even a fraction of how bad it was at first…and I will continue to drink the juice in hopes it will work again. Just thought I would share this info. I know how desperate I was to try anything I thought would help..this really is the only thing non prescription that has helped me. It’s hard living with p some people just don’t understand. It’s not contagious, and truly not anyone’s fault that they have it. I feel like this… I’ve always looked at people for who they are not how they look. The one’s that want to make fun of you just aren’t worth my time..the one’s that stare don’t understand or know what it is. I work with the public if I catch someone staring I just smile and say I have psoriasis. I met my husband when my p was out of control, it covered my entire back. I hid it for awhile, then he saw it and asked me what it was. I told him. He didn’t care and it made me love him even more!! Try to surround yourself with people who really truly know u…your psoriasis won’t even matter! Hope I could be somewhat helpful.

]]> By: Karenhttp://www.psoriasisblog.org/how-psoriasis-affects-my-life/#comment-34399 Karen Tue, 17 Jan 2012 14:08:12 +0000 http://www.psoriasisblog.org/?p=187#comment-34399 Time moves on and the suffering continues. I now have minimal plagues because I am on Remicade IV. I am attached to appointments every 4 weeks to going to hospital to get the treatment. Pain continues everyday, no one knows what the suffering is. My boyfriend thinks he can rub it away, he creates more pain and gets mad when plead with him to stop the rubbing. I am tired of taking meds and seeing doctors. I dress as I want, tell everyone what I have, I am not going to hide because it may make someone uncomfortable. I deserve to live too. Christian love and blessings to all. Time moves on and the suffering continues. I now have minimal plagues because I am on Remicade IV. I am attached to appointments every 4 weeks to going to hospital to get the treatment. Pain continues everyday, no one knows what the suffering is. My boyfriend thinks he can rub it away, he creates more pain and gets mad when plead with him to stop the rubbing. I am tired of taking meds and seeing doctors. I dress as I want, tell everyone what I have, I am not going to hide because it may make someone uncomfortable. I deserve to live too. Christian love and blessings to all.

]]> By: Mariehttp://www.psoriasisblog.org/how-psoriasis-affects-my-life/#comment-34260 Marie Sun, 15 Jan 2012 22:36:40 +0000 http://www.psoriasisblog.org/?p=187#comment-34260 Im now 14, I found out that I had psoriasis when I was 9. In public school no one said anything about my arms &legs until I got transfered to a private school with only a few classes in it. So every one knew every one. I was the only one every one picked on because of it. &i was an over weight kid. As I got into grade 7 I went to a school with only 2 grades in it! But by that time we were all friends &good with each other. So I started wearing shorts & short sleeve shirts to school again. Grade 8 went by &every thing was good. I still had psoriasis bad! I'm now in grade 9 &back in a public school. I'm at a healthy weight. The only thing is that I still have psoriasis. No one at my school knows it. I'm always I mean ALWAYS wearing jeans &sweaters. This one time I wore a 3/4 length sleeve to school &my science partner made a comment about it to me. I told her what it was &she told me I shouldn't be allowed in public . So as a teenager &having a short temper I didn't stop myself from telling her that her face was so ugly it shouldn't be allowed in public. I got detention. I have an all girls gym class coming up next semester &im scare because I sweat easily so I'm going to want to wear shorts but my arms &legs bother me more than that! &im also one of those girls who likes fashionable clothes! &its Sooo hard to find nice clothes! My moms always buying me nice stuff to wear but it's all short sleeves &iove everything she's getting me but I don't wear it. My psoriasis is slowly going away. My one leg has small patches. My other leg is still bad. My arms are bad too. This is hard on my social life. I get invited to water parks beach trips theme parks in the summer but I don't like my arms &legs to I don't go. I'm also a girl who keeps to her self now. I have 1friend that I'm with every day. She seen someone with psoriasis &made a comment a bout it. So now idk if I want to tell her! Im now 14, I found out that I had psoriasis when I was 9. In public school no one said anything about my arms &legs until I got transfered to a private school with only a few classes in it. So every one knew every one. I was the only one every one picked on because of it. &i was an over weight kid. As I got into grade 7 I went to a school with only 2 grades in it! But by that time we were all friends &good with each other. So I started wearing shorts & short sleeve shirts to school again. Grade 8 went by &every thing was good. I still had psoriasis bad! I’m now in grade 9 &back in a public school. I’m at a healthy weight. The only thing is that I still have psoriasis. No one at my school knows it. I’m always I mean ALWAYS wearing jeans &sweaters. This one time I wore a 3/4 length sleeve to school &my science partner made a comment about it to me. I told her what it was &she told me I shouldn’t be allowed in public . So as a teenager &having a short temper I didn’t stop myself from telling her that her face was so ugly it shouldn’t be allowed in public. I got detention. I have an all girls gym class coming up next semester &im scare because I sweat easily so I’m going to want to wear shorts but my arms &legs bother me more than that! &im also one of those girls who likes fashionable clothes! &its Sooo hard to find nice clothes! My moms always buying me nice stuff to wear but it’s all short sleeves &iove everything she’s getting me but I don’t wear it. My psoriasis is slowly going away. My one leg has small patches. My other leg is still bad. My arms are bad too. This is hard on my social life. I get invited to water parks beach trips theme parks in the summer but I don’t like my arms &legs to I don’t go. I’m also a girl who keeps to her self now. I have 1friend that I’m with every day. She seen someone with psoriasis &made a comment a bout it. So now idk if I want to tell her!

]]> By: pietam6http://www.psoriasisblog.org/how-psoriasis-affects-my-life/#comment-28859 pietam6 Sun, 20 Nov 2011 20:36:03 +0000 http://www.psoriasisblog.org/?p=187#comment-28859 also understand! Have had P for 28 years, an unwelcome side effect of Lithium. Stopped the Lithium, but the P decided to stay! The best approach for me has been the Biologics...but they are flawed also. Just started Enbril, after reaction to Stelara. Sometimes difficult 'to keep the faith', when all you want is the 'itch' to stop. The Biologics have stopped the constant 'snowstorms', but the plaques are always there. Really looking forward to learning about this site and how other people cope with this. Don't know why I didn't seek this out earlier! also understand! Have had P for 28 years, an unwelcome side effect of Lithium. Stopped the Lithium, but the P decided to stay! The best approach for me has been the Biologics…but they are flawed also. Just started Enbril, after reaction to Stelara. Sometimes difficult ‘to keep the faith’, when all you want is the ‘itch’ to stop. The Biologics have stopped the constant ‘snowstorms’, but the plaques are always there. Really looking forward to learning about this site and how other people cope with this. Don’t know why I didn’t seek this out earlier!

]]> By: Misahttp://www.psoriasisblog.org/how-psoriasis-affects-my-life/#comment-21174 Misa Fri, 08 Jul 2011 04:32:50 +0000 http://www.psoriasisblog.org/?p=187#comment-21174 I hear u pal...Psoriasis changes everything... I was a soccer player in my university...had a nice gf.. Since psoriasis appeared, my gf left me..I felt ashamed showing my skin in public and so left the soccer team too.. Now I am 20 pounds over weight, not willing to get into any relationship bcz I am ashamed of my psoriasis...Its hard I hear u pal…Psoriasis changes everything…
I was a soccer player in my university…had a nice gf..
Since psoriasis appeared, my gf left me..I felt ashamed showing my skin in public and so left the soccer team too..
Now I am 20 pounds over weight, not willing to get into any relationship bcz I am ashamed of my psoriasis…

Its hard

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