Categorized | Research

How Psoriasis patients are managing their condition

How Psoriasis patients are managing their condition

Catherine Dolan from the Facebook Psoriasis Group suggests to fill in a form.  This form describes a research study that Samuel Kunjukunju from the University of Rochester is conducting.

Sam Kunjukunju, is researching into psoriasis (particularly the treatment of) and would like our help! The purpose of this research study is to look at how Psoriasis patients are managing their condition in order to further Psoriasis research.
http://www.surveymonkey.com/s.aspx?sm=cAZwnVTvKQ6UNoHZhE%2fC9A%3d%3d#q1

This study involves a survey of 32 questions. We estimate that approximately 500 individuals will take part in this study. You will be asked to complete questions about how you have treated your Psoriasis and your experience in managing your condition. This should take about 15 minutes. There is a small chance that some of the questions may make you feel uncomfortable. You don’t have to answer those questions if you don’t want to. In fact you don’t have to answer any question that you choose not to answer (except the initial eligibility questions). Just skip that question and go on to the next one.

Your participation in this survey is completely voluntary. You are free not to participate or to withdraw at any time, for whatever reason without penalty or loss of benefit to which you are otherwise entitled.
All answers are confidential and you will not be required to enter any contact information/information that will identify you individually. It took me under 10 minutes to complete so please if you have a spare few minutes do take part.

9 Responses to “How Psoriasis patients are managing their condition”

  1. Wendy says:

    I tried everything the doctor suggested and finally tried my own remedy. I lathered on bag balm for dryness and CampoPhenique for itching – it healed within a couple months…

  2. Dheeraj Sharma says:

    Hi All,
    I am Dheeraj i was 7 year old when my dad figure out something wrong was going on with my skin ,On first analysis from doc it was clear that this was all mighty sprosisis ,i was not aware of wht it was ,as wht u could expect from 7 year old kid to understand all this crap .But as i grow up it was painfull to see people going away from me . Many use to treat me like i was not belong to be with them .But as time passed i learend to live with this .today i am 25 and still i am fighting with this .
    As most of u know there is no cure for this in alopathic but it can be cure from ayurvedic but only if u get some nice vedh. one more thing which i notice in this is u can not take same medicine for longer time period .when ever u will change treatment ur body will reflect tremendous improvment but after some time it will become stable and again it will start incresing. It mean one of the way to control this is by changing ur treatment cont. The only thing u can have in this is fath in god which wil start fadding as will pass .

  3. Esther Townes says:

    Age: 66 years old:- After 2-3 years, my skin condition was diagnosed as psoriasis by a podiatrist; he saw it on both soles of my feet, then checked I had scaliness in a patch of my hair, palms of my hands, tips of elbow (left), knee (right), and in my left big toenail. I did! I also have arthritis in an (xrayed) spur in a sports-damaged left ankle, which was giving me sharp gout pains at night and stiffness in the morning. I cannot wear heels on shoes any more. No itchiness of skin, unless I ‘abuse’ the skin with harshness: fertiliser, chlorine or similar. Cortisone cream doesn’t work for me. THIS EXTERNAL TREATMENT WORKS FOR ME: Pinetarsol or salycylic acid 50/50 with white parrafin remove scale, but leave redness. I now use Borax Powder to wash affected areas once a day (it will bleach your hair golder!)- sprinkle grains on skin and rub under water; then I lather my palms and feet with Aloe Vera Cream with Vit E (Palmers Brand – NO fragrances, or petroleum etc), and cover my feet in socks, and my hands in white cotton gloves. INTERNAL: Krill Capsules (Omega 3 + antioxidant called astaxanthin) have all but STOPPED gouty pains and morning stiffness (and allow me to drink 2 glasses of red wine if I want!); Vegetable Soup (for Organic Sodium)+ coriander or parsley herbs for lunch; very little sugar, salt and almost NO processed foods in diet. Other supplements – rose hip syrup, calcium citrate with Vit D, and now Vital 3 on occasions. I believe in resting the body sometimes from supplements. Fish is best (deep sea); red meat is worst! Nightshade vegetables in moderation. Housework and gardening in well-fitted shoes for exercise. Natural Health Remedies are a lottery depending on your genetics – I hope this will work for some of you at least. Maybe we should all be classified according to Chinese Medicine Test of Five Elements!

  4. PsoriasisFood says:

    I’ve been dealing with Psoriasis on and off for about 30 years. I’ve had some good success lately in managing my Psoriasis through diet. You can see what I’m doing on my blog…

  5. sandeep says:

    hi, i m suffering from psorisis last 10 years, i take medicine but not removing psorisis parmanently. help me….

  6. Have a question about psoriasis and/or psoriatic arthritis? Visit the National Psoriasis Foundation’s brand-new blog, Dr. Tell Me. Top dermatologists and rheumatologists will answer patient questions about these diseases, and give expert advice/information.

    Check it out today: http://www.doctortellme.org. Let us know what you think, and what questions you want answered!

  7. fmcesl says:

    Dermatologist tells me there is no cure. I want to read about how others are coping. Vectical (ointment) is helpful, but not the magic answer. The sun seems to be my best friend. I am surprised at all the concern about how it looks. Mine is on palms and bottom of feet,painful and inconvenient, threatens to shut down my gardening, quilting, etc. I am determined to avoid oral med akin to Accutane which will require me to stay out of sun and will mess with my liver/chlolesterol level. I take Zocor to lower that, the oral med would raise it!

  8. Sebastiaan says:

    Dear Sudhanagraj,

    There is no cure for psoriasis but there are many ways to improve the symptoms. There are verious psoriasis treatments.

    Please consider visiting a dermatologist.

    Sebastiaan

  9. please let me know if there is any way of curing psoriasis. It comes and goes.Batras have failed in curing me since 3 yrs

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